Curious. I have FMS, and I have theorised that my body cannot store vitamin A. I came to this conclusion because (living in Australia) I sunstroke after 10 minutes in the sun, even when fully clothed. I hurt all over and have other sunstroke symptoms as well. If I take A, in the form of salmon oil, before going out I can last a bit longer, and I take salmon oil also to recover. There is no doubt in my mind that vitamin A is in some form critical to my fibromyalgia. But shortage, not excess, is my problem.
I also cannot eat carrots. There is something in carrots that is toxic (highly inflammatory) for me, but I have no idea if it is vitamin A or something else. Would be lovely to be part of a properly designed clinical test on Vitamin A and FMS.
Salmon oil may have retinol which might give a temporary lift before being converted to Retinoic acid. The carrots wouldn't have free retinol, just beta-carotene so might not give a benefit before the inflammatory reaction was noticed. The post also includes more about the process of an elimination diet without many specific food details.
I see you are committed to your view. But we are not all the same. Are you sure you know the difference between ME/CE and Fibromyalgia? And do you know the difference between FMS that is sensitive to high or low barometric pressure?
I am an educator sharing my experience and research findings. I never let myself get sick enough to meet the insurance criteria for either diagnosis. You are welcome to do whatever you like with the information. Based on the research reviews, the medical world does not really know what either condition is.
My series is about how complex and multifactorial hyperinflammation is and ME/CFS may also have different causes and sub comorbidities. Radiation can lead to similar symptoms. Pain hurts, health is better. No pressure, just sharing my glad news. I figured out how to get better.
Salmon oil may be helping due to the omega 3 EPA/DHA. It would be an Nrf2 promoter which would help.
If carrots are highly inflammatory for you and sun is too, I would lean towards thinking you do have excess conversion. I am working on a post right now regarding a need for more participants. N = 1 or 2 is not enough to really show that this could be the real issue. Too much A as a problem, not too little.
An elimination diet is work but it can reduce problems a lot and if excess vit A is a problem, then it would be the needed solution. Seriously. Medical types always want a medication but sometimes stopping what isn't helping is the most important help that is needed and possibly all the help that will be needed - but ongoing. Stick with it. It seems to be a for life change in the liver enzymes following an earlier viral infection or maybe vak injured folks. I think drug reaction akathisia may also be involved.
In seeking more participants, I would write up a very detailed menu/food list for trying an elimination diet. There is value in just trying diet change. When it works it can work quite well. It may take a week or few to a few months to heal the gut and get rid of autoimmune antibodies if that is also a food related problem.
I think this is a need because what little research I am finding about retinoids in these varied conditions all tend to just suggest supplementing more. People get vitamin A in one-a-days and in many foods. If lack was the problem, then the one-a-day's would help and they haven't. I took one and ate carrots and got sicker and sicker anyway. This is really complex and will be hard to convince non-functional health professionals that nutrients don't work alone.
Curious. I have FMS, and I have theorised that my body cannot store vitamin A. I came to this conclusion because (living in Australia) I sunstroke after 10 minutes in the sun, even when fully clothed. I hurt all over and have other sunstroke symptoms as well. If I take A, in the form of salmon oil, before going out I can last a bit longer, and I take salmon oil also to recover. There is no doubt in my mind that vitamin A is in some form critical to my fibromyalgia. But shortage, not excess, is my problem.
I also cannot eat carrots. There is something in carrots that is toxic (highly inflammatory) for me, but I have no idea if it is vitamin A or something else. Would be lovely to be part of a properly designed clinical test on Vitamin A and FMS.
This post has a symptom list for hypervitaminosis A - excess supplement use is the typical cause of that. Sun sensitivity is included. I explain fluctuating symptoms in it. https://denutrients.substack.com/p/houston-we-have-a-problem
Salmon oil may have retinol which might give a temporary lift before being converted to Retinoic acid. The carrots wouldn't have free retinol, just beta-carotene so might not give a benefit before the inflammatory reaction was noticed. The post also includes more about the process of an elimination diet without many specific food details.
I see you are committed to your view. But we are not all the same. Are you sure you know the difference between ME/CE and Fibromyalgia? And do you know the difference between FMS that is sensitive to high or low barometric pressure?
There is no "one size fits all".
I am an educator sharing my experience and research findings. I never let myself get sick enough to meet the insurance criteria for either diagnosis. You are welcome to do whatever you like with the information. Based on the research reviews, the medical world does not really know what either condition is.
My series is about how complex and multifactorial hyperinflammation is and ME/CFS may also have different causes and sub comorbidities. Radiation can lead to similar symptoms. Pain hurts, health is better. No pressure, just sharing my glad news. I figured out how to get better.
Salmon oil may be helping due to the omega 3 EPA/DHA. It would be an Nrf2 promoter which would help.
If carrots are highly inflammatory for you and sun is too, I would lean towards thinking you do have excess conversion. I am working on a post right now regarding a need for more participants. N = 1 or 2 is not enough to really show that this could be the real issue. Too much A as a problem, not too little.
An elimination diet is work but it can reduce problems a lot and if excess vit A is a problem, then it would be the needed solution. Seriously. Medical types always want a medication but sometimes stopping what isn't helping is the most important help that is needed and possibly all the help that will be needed - but ongoing. Stick with it. It seems to be a for life change in the liver enzymes following an earlier viral infection or maybe vak injured folks. I think drug reaction akathisia may also be involved.
In seeking more participants, I would write up a very detailed menu/food list for trying an elimination diet. There is value in just trying diet change. When it works it can work quite well. It may take a week or few to a few months to heal the gut and get rid of autoimmune antibodies if that is also a food related problem.
I think this is a need because what little research I am finding about retinoids in these varied conditions all tend to just suggest supplementing more. People get vitamin A in one-a-days and in many foods. If lack was the problem, then the one-a-day's would help and they haven't. I took one and ate carrots and got sicker and sicker anyway. This is really complex and will be hard to convince non-functional health professionals that nutrients don't work alone.